Twenty First Century Science

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B1 You and your genes

• http://www.hfea.gov.uk/
  The Human Fertilisation and Embryology Authority was set up by the UK government to regulate fertility treatments such as IVF and human embryo research. Their website has up-to-date information about current laws for new genetic treatments.
• http://www.spuc.org.uk
  The website of the Society for the Protection of the Unborn Child, which is strongly opposed to many treatments licensed by the HFEA.
• http://www.hfea.gov.uk/cps/rde/xchg/SID-3F57D79B7F26E99C/hfea/hs.xsl/380.html#sex_selection
  In 2003 the HFEA reported on the regulation of embryo selection to choose the sex of a child.
• http://www.hgc.gov.uk/
  The Human Genetics Commission is the UK Government's advisory body on how human genetics will impact on people. Their website keeps you up to date on new developments and their advice.
• http://www.hda.org.uk/
  The UK's Huntington's Disease Association website includes news and background information about Huntington's disease for people affected, their families and friends, and health care professionals.
• http://www.cftrust.org.uk/
  The CF trust provides support for families with cystic fibrosis. The 'Living with CF' section has plenty of information about the disease, and the website also includes updates on treatments.
• http://www.nuffieldbioethics.org/home/
  The Nuffield Council on Bioethics is an independent body set up in 1991 to consider the ethical issues arising from developments in biology and medicine. Their excellent reports are free of charge.
• http://www.wellcome.ac.uk
  http://www.wellcome.ac.uk/knowledgecentre/education
  http://www.wellcome.ac.uk/en/genome
  The Wellcome Trust has regular publications which provide excellent resources and support. The principal sites are the main website, educational resources homepage, and human genome website.
• http://www.jeansforgenes.com
  'Jeans for Genes' is an event organized by four national charities to raise funds for research into serious genetic disorders that affect children. Their colourful website has background information about some of these diseases.
• http://www.abpischools.org.uk/resources/poster-series/biotech/scid.asp
  http://news.bbc.co.uk/1/hi/health/1906999.stm
  http://www.guardian.co.uk/genes/article/0,2763,678587,00.html
  http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2002/04/04/ngene04.xml
  http://www.jeansforgenes.com/2_about/2145_movie.php
  Reports on Rhys Evans’ gene therapy treatment.
• http://www.guardian.co.uk/genes/article/0,2763,875593,00.html
  A report on a potential leukaemia link to gene therapy from SCID.
• http://www.jeansforgenes.com/11_news/1106_news_20052003.php
  A news article reporting recommencement of gene therapy trials in UK.
• http://www.ukbiobank.ac.uk
  http://www.guardian.co.uk/genes/article/0,2763,1048382,00.html
  http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2004/09/06/nba06.xml
  http://www.the-scientist.com/news/display/23228/
  http://www.guardian.co.uk/genes/article/0,2763,1217887,00.html
  A selection of useful websites related to Biobank.
• http://www.guardian.co.uk/genes/0,2759,395698,00.html
  The Guardian website has a special report on genetics and ethics covering a wide range of issues.
• http://www.ivfdirect.com
  Guy’s and St Thomas’ Hospital ( London) Assisted Conception Unit
• http://www.sciencemuseum.org.uk/onlinestuff.aspx
  Look at Antenna, an online exhibition area from the Science Museum in London, devoted exclusively to science and technology news. It has in-depth and news headlines activities – check the archives for stories on Dolly the Sheep, news items on stem cell research, and many other topics. The site is regularly updated.
• http://gslc.genetics.utah.edu/
  This website has information on genetics from the basics to the more complicated. What is DNA? What are chromosomes? What are cells made of? There are also sections on cloning and genetic testing.
• http://www.roslin.ac.uk/publicInterest/index.php
  The Roslin Institute is where Dolly the Sheep was produced. Their site includes information and viewpoints from them on cloning and genetic modification.
• http://www.progress.org.uk/
  BioNews is a weekly update of news stories about human genetics.
• http://www.globalchange.com/main.htm
  A website featuring opinions on a number of bioethical debates.